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  • Lesson Learned: I Am Not a Number or a Disease

     

    Shortly after I finished nursing school in Louisiana, I moved out of state. It was the summer of 1995. I had been a nurse for only 3 months and secured a job in the Cardiovascular Intensive Care Unit at a nationally known transplant center. I was a mere 20 years old and knew that an amazing road was awaiting me.

    A couple of years later, I took a promotion as a heart/lung transplant coordinator. To say that it was an eye opening experience would be an understatement. It was my first time I worked closely with patients through the entire transplant process, not just the brief hospital stay after a transplant. I experienced the emotions of the patients and their families as they anxiously awaited approval to be placed on the transplant list. I also feared with my favorite patients that they would die before an organ became available.

     

     

    What I didn’t expect was how people viewed and experienced life after a transplant. I assumed that life would return to normal. So one day shortly after I was in my new role, I was sitting in the cafeteria eating lunch. A man tapped me on the shoulder and asked if I was the new transplant coordinator. I relied, “Yes sir, I am.” And then he stated very simply, “I’m #456.” “What?” I asked.

    You see this man was told that he was transplant #456. He received the 456th heart transplant at that hospital. That wasn’t the problem- that was a fact. The problem is that he didn’t introduce himself to me by his name. Rather he identified himself as his number. And he wasn’t the only person to identify him/herself by their number.

     

     

    I left that position before my maternity leave with my first child, Rebecca. Shortly after Rebecca’s birth, I found myself in the middle of a divorce. (You can read about that here). I found myself at the age of 24 needing a divorce attorney and “Bill” was recommended by several people. Bill became my attorney and he was a pistol. But he was great at what he did. Bill loved his family, his secretary, and his career. As opposed to many of the people I met in my position, you would never have known that he had received a heart transplant many years prior. I had never seen him at the hospital and we didn’t even talk about transplant life for quite some time.

    When we finally discussed it, he told me that it had been a difficult decision for him to accept a heart transplant. He emphatically stated that he refused to accept a heart from a donor, only to later waste it whining about problems with his anti-rejection drugs, biopsies, or ugly scars. He chose to have the transplant because he simply wanted more time with his wife, children, and career. He wasn’t going to disrespect the gift he had been given. I loved that about him.

     

     

    Fast forward six years later to when I was recovering from cancer. The first year after treatment was complete was tough as Jeff and I were struggling to find our new normal with kids who were 2, 3, and 7 years old. The meals stopped coming from friends and family. Jeff’s law work hours resumed. Medical bills started pouring in. And my hair went from gray/white to red and wavy. I looked like Simon LeBon from the 80s group Duran Duran. It wasn’t a good look friends.

     

    The reality of life after cancer had begun to sink in. There were moments that year that I felt sorry for myself. I was tired and exhausted. The adrenaline from the fight with cancer had worn off shortly after my treatment was complete.

    Shortly before I hit my one year anniversary date of remission, I had a life changing moment in the grocery store.  I was unloading my grocery cart at the checkout counter. I couldn’t make out exactly what the female customer was saying to the male employee but I could tell he wasn’t very interested in her message. After she left he rolled his eyes at me and stated, “She is the most miserable person that I have ever met. She beat cancer and all she ever talks about is about all of her other problems. I’ve never met a person who complains more than her. She’s really not living.”

    I just stared at him and was completely silent. And that in and of itself, is a miracle my friends. I’m not the silent type.  I felt as if I had been punched in the gut. And as I drove home with tears staining my cheeks, I asked myself…

    Am I becoming a legacy of cancer rather than Jenny, a lover of all things red, travel, and tangerine jelly bellies?

    Am I becoming a number rather than praising God for more time with my three children?

    Am I becoming a victim with multiple scars and weight from steroids, or Jenny, who has so much more living left to do?

    The responsibility is mine. Solely mine. It still is. I believe that illness, divorce, or other problems can create fear and bitterness and can trap you if you allow it. Sometimes it is something that pulls you back in when you least expect it. Please let me encourage you to fight this. It is up to each of us to decide what we want to be defined by.

    Don’t get me wrong. It’s not wrong to talk about your story or try to serve and encourage others. Just don’t let it consume you to the point that you forget to move forward. It will paralyze you. It will choke you. I have seen this with my patients and some fellow friends that have battled disease and divorce. I have felt this at times on my own journey through cancer and divorce.

    I know that is not what God wants for my life. I don’t want that for my life. 

    I am not just a number. I am not just a cancer survivor. 

     

     

    I am Jenny, a wife to Jeff, a mom to 4 crazy kids, a daughter, a sister, and a friend to many amazing people. I will be a world wide traveler, a dancer, and I will continue to get the most out of life until I breathe my last breath.

    Life is good. Life is so good.  

     


    20 Comments

    Comments

    Kerry

    beautiful Jen…for more help on this front, I turn to Byron Katie. You can follow her on facebook. http://www.thework.com I like her children’s book Tiger Tiger is it true? http://tinyurl.com/3knqrus

    17 August 2011 at 9:03 am Reply
      Jenny
      Jenny

      Thanks Kerry- I will check her out. Thanks again for all the encouragement and support.

      18 August 2011 at 6:10 am Reply
    Kerry K.

    Absolutely beautiful, Jenny. A message I hope is spread far and wide with your amazing blog. So proud to have you as a friend. Love, K

    17 August 2011 at 10:33 am Reply
      Jenny
      Jenny

      Thanks Kerry. So glad that we’ve reconnected. More than you could know. Thanks for sharing my site- your support has been fabulous. xoxo-j

      18 August 2011 at 6:11 am Reply
    Marna

    Inspirational to all who read it! And I love the picture of us! :-) Miss you so much!

    17 August 2011 at 11:01 am Reply
      Jenny
      Jenny

      Thanks Miss Marna Kay. It is actually my favorite picture of us ever. Still wish you lived next door so I could borrow some sugar for just an excuse to stop next door. Love to the kids.-J

      18 August 2011 at 6:12 am Reply
    Anu

    Your post is so beautiful,Jennifer!!! I’m sure it’ll be an inspiration to many especially in these very turbulent times when everything seems so upside down. Keep posting:)

    17 August 2011 at 12:01 pm Reply
      Jenny
      Jenny

      Thanks Anu. Your words are so incredibly kind. It has been a tough couple of years for our country but I’m optimistic. Thanks for checking in and love to your new little one.-J

      18 August 2011 at 6:14 am Reply
    Jenny

    I love your definition of who you are. You are truly an inspiration!!

    -Jenny in Maine

    17 August 2011 at 1:39 pm Reply
      Jenny
      Jenny

      Thanks Jenny. I really have been struggling with labels that we give each other and ourselves. I know that I am so much more than I give myself credit for at times. We all are. Thanks so much for stopping by.-J

      18 August 2011 at 6:15 am Reply
    Linda

    What a beautiful testimony of God’s amazing grace to you and your family. I met you when you were in the heart transplant job in Tucson, as a friend of Chip and Marna’s when the Lord chose to take David home. What a blessing you were then to the Parker’s and what a blessing you are now to the world. God bless!

    17 August 2011 at 10:14 pm Reply
      Jenny
      Jenny

      Thanks so much Linda for coming to my blog. It is so strange how small and vast this world is. I remember you well and you were such a source of encouragement for Miss Marna and Chip. That time during our pregnancies, divorce, death- it seems like yesterday and forever ago at the same time. God has been faithful through it all, although it is difficult to feel/see in the midst of those trials at times. But He was indeed smack in the middle of it. Love to you-J

      18 August 2011 at 6:21 am Reply
    Jeri Ann

    So true, Jenny. Your life experience has given you great insight (and maybe a writing career!). It took me a loooonng time to get over my “label” and the way (I felt) people victimized and stereotyped me. When I finally realized I’m not defined by my past (even though it helped me to be me now) no matter what “well-meaning” people want to say and think, I was able to see the true love and mercy of God for me. Does that make sense? I know you get it. :)

    18 August 2011 at 12:22 pm Reply
      Jenny
      Jenny

      Sometimes we have to allow ourselves the same grace that we give out to others. Often I am hardest on myself. As far as well-meaning people, well that is an antonym to what most of them represent. I wish I had a mirror so that I could see myself as God did. Always a work in progress. I’m glad you have let go of the infamous label(s) that we heap on ourselves and others. Blessings Jeri- Jenny

      18 August 2011 at 3:32 pm Reply
    Nicol (imanewbierunner)

    Jenny, you are amazing. Thanks so much for being such an inspiration!

    19 August 2011 at 12:36 pm Reply
      Jenny
      Jenny

      Thanks Nicol! It has been a tough road but undoubtedly easier than others I know. Hope to share my experiences and the lessons learned along the way for many more years to come. Look forward to the day that we meet in person. -J

      20 August 2011 at 6:26 am Reply
    Lindsay Banner

    Just found your blog via Becky Higgins’ link on facebook- so glad I stopped by!! You are a breath of fresh air, a true inspiration!! Thank you for writing!! XOXO

    30 August 2011 at 2:49 pm Reply
      Jenny
      Jenny

      Thank you Lindsay! Thanks for the kind words. It’s been a journey filled with tears and joy. Just trying to hold onto the joy through it all. Hope you check back in- lots of good times ahead.

      31 August 2011 at 8:44 am Reply
      Jenny
      Jenny

      Thanks Lindsay. I really work on finding that balance between being an inspiration but keeping it real. I don’t ever want to paint the picture that I have it all together. I am like everyone else- trying to be a better person. A definite work in progress. Thanks for stopping by and your kind words. -J

      1 September 2011 at 3:42 pm Reply
    Frelle

    what a full post… insightful about who you are, where you’ve been, and what brought you to being so motivated to live fully. Thank you for pouring your heart out!

    15 September 2011 at 12:58 pm Reply

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